Oh my. Here we are again. you are snoring away in a hospital bed as I look at you and wonder what is going on in your little body. All tests are coming up neg for infection and yet your counts are dropping and your temp is rising. We've managed to keep you out of this place for 7 months. Not too bad, but still not good enough. Only 8 months of treatment left. I hope this is your last admission. I'd love to see you go allthe way to Sept. without being hospitalized.
The Holidays came and left and I was too busy to blog, but they were great. It was so nice to be able to take you to every family gathering. You got to sit on Santa's lap, play with all of your cousins and open lots of presents! We all had a good time seeing you so happy and excited.
We are going through some hard times right now, but with the love and support of our families and friends it sure makes things easier.
You are awake now and smiling at your piggy movie while you suck down a milky bobble. Hard to believe that since you are being pumped full of some really harsh antibiotics and your temp is 104. Oh and I forgot to mention that you are anemic and could use a transfusion but we are trying to get you by without one. I've said it many times before but I will say it again. You amaze me little one. You are always a delight to be around.
This morning when you woke up and realized that we were here and we didn't go home from the ER last night you said you wanted to go home. I told you that we needed to stay so you could have more medicine and you were cool with that. Then you asked if Aunt Kassie was going to come and play Play Doh with you. It didn't register with me at first, but then I realized that you were remembering your last hospital stay 7 months ago. I can't help but wonder what you think about. You are so smart. Maybe when you are older you will tell me things that you remember. I don't like to dwell in the past . I really just want you to focus on you being a happy kid living as normal of a life that you can in spite of things. Always moving forward. I try to make the best of situations like this and you make it easy. But maybe once we are through this, you can enlighten me on your perspective of how it all went. (if you remember)
Oh on the bright side of things today, your favorite PA Robert Lucas came back from a 5 month leave and stopped in twice to see you today. He brought you a cute little stuffed goat which you love. :)
Well you are reaching for me now, so I better take care of you. I love you little sister. Get well, be strong and turn that corner for us.
Aubrey, we are here too! I'm so sorry you guys have to be here and that Jenna is sick. Your post about her sounded almost exactly like what I could write about Elena - high temps, no explanation, etc. I hope you guys get some answers soon and that Jenna turns around! She sure is adorable.
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