About Me:

I'm a very happy and delightful person. I love spending time with my family. I am active and affectionate. I am strong and inspiring. I love all living things and I am easy to please. My mom thinks I am very easy to love. I bring joy, light, and love to our family. I am like a sweet sticky substance that bonds our family together. On July 6th, 2009 When I wss only 13 months old, I was diagnosed with Acute Lymphoblastic Leukemia. I started Chemo Therapy the next day. I'm not going to lie.. it is nasty stuff, but it is saving my life. I am doing my best to not let it slow me down. I love life. I have a lot yet to experience and I am always reaching.

Look at me now

Monday, April 11, 2011

Not So Bad

Well of coarse I ended up taking you to the ER last Thurs. You had a late nap and woke up fevered and screaming that your poor little ear and face hurt. At least I got you there at a decent hour this time. (about 5:30) After blood counts and cultures were taken they gave you some Tylenol. Finally you got some relief after a few hours of crying from the pain. I wish I could have given it to you sooner but the docs have to check you out first. I ordered your food while we waited and by the time it came you had a big appetite. That was reassuring. My awesome little girl... you passed up the fries, choc shake and cookies and ate the green beans, fruit and chicken cordon blue. I love that you like healthy food. Your counts came back great. TOO GREAT! I was freaking out. I thought there had been a mix up at the lab and if not, then what did it mean to have counts that high? They gave you Rosephin and fluids and I think we would have gotten out of there sooner but since I was freaking over counts... well I think that slowed things down. You played with the nurses and braved having your port de- accessed. The needle even sort of snagged on its way out, and you were awesome about it.  Oh and accessing it when we got there was no fun. The numbing cream had worn off and the nurse had to re do it because the 1st needle wouldn't draw. Anyway, we were home by 11:30 pm and woke up the next morning to our regular routine. YAY! It must have just been an ear infection, because the fever fizzled out on Friday and never came back.

Thursday, April 7, 2011

Another Fever

Yesterday was a beautiful day outside. You were able to play outside and jump on the trampoline. You love to be outside. We celebrated our friend Michelle's 35th birthday last night. It was fun. The Woods are family to us, you love Michelle like she is your Aunt.
You stayed up until 1:00 a.m. That was not fun for me and then I noticed that you were warm at about 5:00 a.m. Needless to say I didn't get very much sleep. the fever is low, only about 99.5 to 100.1. I just hope that's all it does. Really it just need to go away. I really hate to take you up to the hospital unless it is really necessary. I dread the thought of you being admitted. The meds they have to give you are so hard your little body. Hardcore antibiotics. No fun. They make you feel worse than the chemo. Oh please kick this before it turns into something! You are so sweet even though you probably aren't up to par today. It's chilly outside but I already had to drag you in from playing with no shoes, socks  or jacket. I just don't want your body to have to work at fighting outside elements  today. you are still playful and cheerful so far. I hope you an stay that way all day. I'll do my best to take care of you and keep happy today. I love you muffin.

Tuesday, April 5, 2011

Counting Down for Orlando

Only 15 more days and we will be on a plane to Orlando. Although I am dreading the flight with 4 kids, I am really looking forward to sunshine and new surroundings. You are excited too. You keep seeing the commercials for Sea World on TV. You can not wait to see the Dolphins and ride merry go rounds and roller coasters. Yay!  You deserve it after all that you have been through. I hope you remember the parts make you the most happy. We are so grateful for the Make A Wish foundation and all of the people who support it. It should be good timing too, not too hot and you have already had your monthly chemo and steroids so you should be feeling pretty good.  You are such an active and busy kiddo. I hope you have the stamina for all of the theme parks. If not, that's okay. I will hang with you and do what ever you want. After all, this trip is all about you. Your brother's and Mikayla are super excited too. Who wouldn't be? It's a kid paradise!
Today is a yucky gloomy day, but you are as cheerful as ever. You are hooked on ham slices with mustard. Silly girl! You have been coloring, playing with stickers, and took a forever long bath until the water was freezing cold. I had to drag out again. You really love splashing in the water.  Funny, you have not played ballerina yet today. Oh well , plenty of time for that.
Love you