You had a great day today! Making up for yesterday I suppose. You are finally on the mend from your illness ( the virus) and you had to be NPO for a back poke and had to get your Vinc in clinic. You were so hungry and I didn't know how to help you understand why I couldn't let you eat that stupid banana until after your nap "downstairs" ( in the Rapid Treatment Unit). Your buddy Robert the PA was not there and neither was your favorite therapy dog, Oliver. Your numbing cream wore off too quickly and you felt your port access. You did luck out and escaped another blood transfusion. Your crit (red blood) was only 22, but Doc said since your pre red cell count was high, you get a week off of oral chemo to recouperate instead. Sounds good to me! I'm sure you still feel poopy, but you sure don't show it.
We had so much fun at the State Fair today. Thanks to Hopekids! We met up with Carson and Jodi. They're great, and the 2 of you are just natural buddies. Two peas in a pod. You rode the rides. Your first time ever doing anything like that. Your smiles were huge!!! You loved the dragon roller coaster, the train, the helicopter the carousel, the cars, and the dragon spinning thing. You got to see cows, goats, sheep and even baby pigs. You watched the pig races very patiently sitting next to Carson. It was cute. Later on I took you with the young men and young women to Hollywood Connections. We were supposed to go roller skating. I was going to push you in the stroller, but they ended up mini golfing instead. So, more rides for us! Luckily your sissy was there to enjoy the fun with us. More roller coaster, carousel, balloon lift and even a bus ride. I love to see you and your sister playing together. It makes me so happy. As I was watching you and Mikayla spin on the balloon lift, I couldn't help but wonder if you were getting nauseated. But then I realized that's probably just a normal everyday feeling for you anyway. Kinda made me sad. And I thought about how fearless you are. Going fast, up and down, you loved it all. That's just who you are. Strong and fearless. Easily comforted, and forgiving of life's mishaps. I love that about you. I wish that I could be half the person you are all ready!
About Me:
I'm a very happy and delightful person. I love spending time with my family. I am active and affectionate. I am strong and inspiring. I love all living things and I am easy to please. My mom thinks I am very easy to love. I bring joy, light, and love to our family. I am like a sweet sticky substance that bonds our family together. On July 6th, 2009 When I wss only 13 months old, I was diagnosed with Acute Lymphoblastic Leukemia. I started Chemo Therapy the next day. I'm not going to lie.. it is nasty stuff, but it is saving my life. I am doing my best to not let it slow me down. I love life. I have a lot yet to experience and I am always reaching.
I love what you said at the end about being half the person she is. I think that about Cami all the time- it is amazing that they can go through the things they do, and bounce back the way they do. These kids are amazing and I cant wait to meet Jenna in person (I feel like I know her already) WHAT A CUTIE-PIE!!!
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ReplyDeleteSeriously, she fights her way through it all with a smile on her face and a hug or a kiss for anyone in sight who needs it. She is amazing. All these kids that I have met so far are so special, sent here to teach us all a thing or two. I can't wait to meet Cami as well!
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