Okay, so I don't know where to begin or how to start with this. I usually just blog as if I am speaking to Jenna. It's just my way of sort of journaling for her since she is so young and doesn't really understand what she is going through. I try to write my point of view for her hoping that someday she will be able to read and understand what we are going through without my dwelling on the gloom. But now I am writing for anyone who listen.
Cure Search is having a walk in SLC this year. July 9th as a matter of fact. I know, I know it is very short notice but at least it doesn't give any one time to forget right? This such an important cause. I beg you all to to think, consider and check into it, and most of all I am begging you to donate. Anything, $1, $5, $50 whatever, it all adds up. If you have time, please join our little Jenna and I as we walk for all the children who have had, do have and most importantly.....WILL have cancer. The numbers of children diagnosed each year are astonishing! You may not realize how many children there are in Utah with cancer. I know I didn't. You don't see too many sick bald headed children out and about. There is good reason for that. You see, they are probably sick in hospitals, being treated in hospitals, sick and on meds at home or just stuck at home sheltered from all the outside illnesses and germs from a compromised immune system due to their "TREATMENTS" But I promise you they are there. Lets not forget the special angels that have already passed as well. Most of them passed even after suffering through their " treatments".
Although treatments have gotten better, I don't think it's nearly good enough. So many children had to suffer and die to get us to the point we are at now, but still we are losing precious lives. Jenna's cancer had very good odds, some are not so lucky and even with her odds, I don't think its good enough. NO child should have to suffer the treatments we have now, and NO child should perish from Cancer or it's treatments.
It's been so hard to explain to Jenna why we still give her medicine and why we still check her blood when she is not sick in her 3 yr old eyes. No cough, no runny nose, no fever, no vomiting, etc. She is on a low dose chemo everyday and has a weekly chemo @home and from what I hear from moms who have older kids is that they still feel a little yucky, but it is doable. Jenna probably doesn't know what it feels like to feel really good. And what do I tell her if she figures out that the Chemo they give her monthly at the hospital is causing her to really feel yucky for about a week or so? Will she understand that we make her sick to keep her healthy? Hmm.
This is where you come in and anyone else who cares about kids at all.
Bottom line is that children's cancer research is far too under funded. We need cures for these guys. We need better treatments so kids diagnosed with cancer can have a chance to just be kids and live the long happy lives we all deserve. I'm not asking for this on behalf of Jenna, she has and is already suffering through her treatments. She is almost done, only about 9 weeks left. Then all we have to worry about is a relapse which would be VERY bad , other cancers later from treatment, and late affects such as learning disabilities, infertility etc. You get the idea. I am positive. I think she is going to be just fine. I'm just saying those are possibilities.
I am asking you all to consider and pass the word on. Raise awareness and funding for children's cancer. It could your be your child, your grandchild, niece, nephew, bratty neighbor kid , anyone. We never know who cancer will strike next. I never understood or really even thought about it until I found myself in a hospital 2 years ago this week in July with my baby as I begged God ( and still do) to let her stay here with me and our family. Please help all our future children diagnosed with cancer. Our beloved children all deserve the best odds.
Thank you so much for even reading this.
God Bless XOXOX
Please scroll down to the playlist player and click on pause before watching this video.
The kiddos in this video are all Utah kids including a few pics of Jenna.
I'm a very happy and delightful person. I love spending time with my family. I am active and affectionate. I am strong and inspiring. I love all living things and I am easy to please. My mom thinks I am very easy to love. I bring joy, light, and love to our family. I am like a sweet sticky substance that bonds our family together. On July 6th, 2009 When I wss only 13 months old, I was diagnosed with Acute Lymphoblastic Leukemia. I started Chemo Therapy the next day. I'm not going to lie.. it is nasty stuff, but it is saving my life. I am doing my best to not let it slow me down. I love life. I have a lot yet to experience and I am always reaching.